Emma Lee & Me: Hydrocephalus Awareness Month #HAM2014

Tuesday, September 9, 2014

Hydrocephalus Awareness Month #HAM2014

This year, September is an even bigger deal for us than it was last year. A year ago, the goal was to try to raise awareness during Hydrocephalus Awareness Month (#HAM2014) and get the word out to our local community that this condition is more common than one might think. One way we did that was to have an article published in the Cross Timbers Gazette telling Emma's story. The article was a big step for both of us, and one in the right direction.

This year, now that I am also a Co-Chair of the inaugural DFW Hydrocephalus Association WALK happening on Saturday, September 27th, it is even more crucial that we reach as many people as possible. This year, we are not only raising awareness - we are also raising money to fund research to find a cure. Our goal when planning the event originally was to raise $18,000 and have 200+ walkers. As of today, we are already over both goals with a total amount raised exceeding $33,000 with just over two more weeks to go! If you're interested in donating, please click HERE.

When I started looking for ways to try to reach more people, I remembered the wonderful people at the Cross Timbers Gazette and contacted the man that wrote the original article on Emma last year. I asked if they would be interested in doing a follow up piece to help us and he was delighted to support us! The article from this year can be found here.

In keeping with #HAM2014, here are some facts about hydrocephalus put out by the Hydrocephalus Association (HA).